Harrison was born after four long years of trying to make a family and after many miscarriages and a molar pregnancy. We thought we had finally achieved our long-awaited dream. The pregnancy was normal, but Harrison came into the world not breathing or moving. He was diagnosed with Myotubular Myopathy (XLMTM), a rare genetic disorder. The specialists have said he may only survive for about two years.
Since the very moment he was born he has not been able to leave the hospital. We so desperately wish to bring him back home to New Zealand and have been advised by doctors that a specialised medical flight is the only way this can happen. We are asking for your help with the astronomical cost of this endeavour. Your donation would allow this beautiful baby boy to live out his life surrounded by family and love with the resources and support he so desperately needs.
Thank you for helping our sweet, brave, little boy who deserves a chance.
"The most visible creators I know of are those artists whose medium is life itself. The ones who express the inexpressible - without brush, hammer, clay or guitar. They neither paint nor sculpt. Their medium is simply being. Whatever their presence touches has increased life. They see and don't have to draw. They are the artists of being alive..."
Hi there, I'd really appreciate it if you could share or donate to this GoFundMe, gf.me...
Just went there today and they are closing on January 15, permanently. Apparently their Highbury store is closing too. Shocked. Are the Methodists opting out of having op-shops? Anyone know more about this?
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