Mum needs $100,000 to treat baby son with fatal bone condition. Can you help?
A baby boy will only live for a few months without a $100,000 medication that is not funded in New Zealand.
Kaan Hunter was diagnosed with an extremely rare and fatal bone condition, infantile hypophosphatasia, shortly after his birth. Without the medication, Kaan's life expectancy is only four to six months. He is the only one in NZ with this condition.
"Doctors have put in an application to Pharmac to see if he will get accepted, but it's so much money and they said 'don't hold your breath'," the Bay of Plenty mum said.
A Givealittle page has been set up to help buy Kaan some time.
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Shame on You!
This is what greeted workers at Brookfield Sallies yesterday morning. All of it looks like it should have gone straight to the tip, which is what the Sallies will now have to pay to do. Surely whoever does this has no conscience. The Sallies do an amazing job of helping people in times of need and they don't need to be spending any money they receive on doing your dirty work, especially at this time of year.
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