Mum needs $100,000 to treat baby son with fatal bone condition. Can you help?
A baby boy will only live for a few months without a $100,000 medication that is not funded in New Zealand.
Kaan Hunter was diagnosed with an extremely rare and fatal bone condition, infantile hypophosphatasia, shortly after his birth. Without the medication, Kaan's life expectancy is only four to six months. He is the only one in NZ with this condition.
"Doctors have put in an application to Pharmac to see if he will get accepted, but it's so much money and they said 'don't hold your breath'," the Bay of Plenty mum said.
A Givealittle page has been set up to help buy Kaan some time.
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Cowboy hat
A big thankyou to Gary who was really kind and gifted a beautiful hat to my son for Christmas thanks so much
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