Amaria Emery, of Kaiapoi in North Canterbury, is one of just 10 children in New Zealand with CDKL5 – a neurological condition that means she is missing a protein needed for brain development.
Parents they spoke to encouraged them to get her into intensive therapy, and the family tries to visit the Timmermans Method Therapy Clinic in Adelaide once or twice a year, finances permitting. There, Amaria receives three-hour one-on-one therapy sessions a day for three weeks, and while exhausting for her, the results are paying off.
The Emerys said the main hope for Amaria was to get her walking, something they work on with her through her therapy exercises each day. They are optimistic of a medical answer for the condition in the future.
But their immediate goal is to conquer a half-marathon in Queenstown later this month – a challenge they have been trying to get over the line for some time. A Givealittle page has been set up for anyone wanting to support the runners, and in turn Amaria’s family which includes sisters Arabella, 8, and Alessandra, 7.
Has anyone ever seen something like the image below in an older Kiwi home? Does anyone remember them from their childhood? These strange slots allowed you to rid yourself of an old razor and never think of it again...but it also meant, years down the track, that someone renovating would be in for a nasty, rusty surprise.
I'm certain I've seen something like this here in Aotearoa-NZ, but can't for the life of me recall where. It was in the back of the medicine cupboard. Let us know if you've seen, had - or have - one in your home.
A leading coronavirus expert is calling on the Government to make scanning at potential “super-spreader” venues, such as bars and nightclubs, mandatory amid continued low use of the Covid-19 Tracer app.
Epidemiologist Dr Michael Baker said the next six months would be a “very dangerous” time for the country with a high risk of an outbreak while waiting for the vaccine roll-out in April.
Do you think scanning should be mandatory at pubs, nightclubs, etc?
89% Yes89% Complete
8.6% No8.6% Complete
2.4% I'm undecided2.4% Complete