Intensive therapy paying off for young girl with rare condition
Amaria Emery, of Kaiapoi in North Canterbury, is one of just 10 children in New Zealand with CDKL5 – a neurological condition that means she is missing a protein needed for brain development.
Parents they spoke to encouraged them to get her into intensive therapy, and the family tries to visit the Timmermans Method Therapy Clinic in Adelaide once or twice a year, finances permitting. There, Amaria receives three-hour one-on-one therapy sessions a day for three weeks, and while exhausting for her, the results are paying off.
The Emerys said the main hope for Amaria was to get her walking, something they work on with her through her therapy exercises each day. They are optimistic of a medical answer for the condition in the future.
But their immediate goal is to conquer a half-marathon in Queenstown later this month – a challenge they have been trying to get over the line for some time. A Givealittle page has been set up for anyone wanting to support the runners, and in turn Amaria’s family which includes sisters Arabella, 8, and Alessandra, 7.
Rangiora after-hours clinic faces more delays
By David Hill, Local Democracy Reporter
The wait continues for a promised North Canterbury after hours healthcare facility.
Work is yet to begin on the proposed new Rangiora Medical Centre at the Rangiora Health Hub on Ashley St, which was first proposed more than five years ago.
The Waimakariri District Council granted a resource consent for the project in 2022, while the building consent is still being processed.
A council spokesperson said the application was on hold while some civil construction details are resolved by the applicants’ consultants.
‘‘We hope to be able to grant the consent in the very near future.’’
The Ministry of Health entered into an agreement with South Link Health Group in 2021 to build the after hours facility, following a petition being presented to the former Canterbury District Health Board (CDHB) two years earlier.
South Link Health Group is a network of 26 medical practises, and is responsible for funding and constructing the new facility.
It will include full radiology services (ultrasound, CT and MRI scans), GP services, a pharmacy, and urgent after hours healthcare.
A spokesperson for South Link Health said in December work was expected to begin on the site in March, with the medical centre on track to open in the first half of 2025.
In the meantime, limited after hours healthcare is available at Durham Health, Rangiora, and the Amberley Medical Centre, and at local pharmacies.
Residents can ring 111 in an emergency, contact their GP to speak to a triage nurse, call Healthline 0800 611116 for free advice from a nurse, or arrange online video consultations with a doctor (for a charge).
The after hours triage service is delivered by Whakarongarou and operates in North Canterbury, with access to a St John paramedic if a face to face assessment is required.
A rural after hours service, Ka Ora Telecare, offers phone or video consultations with a doctor. Go to kaora.co.nz/app/services/sub-services/3. The Pegasus 24 Hour Surgery in Christchurch is also available.
■ Public interest journalism funded through New Zealand on Air.
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